A new report released this week by major children’s hospices reveals that families of terminally ill children are being pushed to their breaking point by a fragmented care system.
Parents described having to "battle" for essential medical services, with some only discovering hospice options by chance while struggling with basic care at home. Charities Hope House and Tŷ Hafan argue that the current bureaucracy forces grieving families to act as their own project managers during a crisis. While hospices provide life-changing end-of-life transformations, they remain heavily reliant on charitable donations because government funding is often inconsistent or insufficient.
These organizations are now demanding urgent legislative intervention to ensure every family receives automatic, standardized access to palliative care regardless of their location.
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